Resource Seminar On ALS Slated In Bethel

BETHEL — The Westchester office of the Muscular Dystrophy Association’s-ALS Division is presenting a greater Danbury area ALS Summit on Research and Resources to heighten awareness of the neuromuscular disease amyotrophic lateral sclerosis (ALS), or Lou Gehrig’s disease. The event will take place at Bethel Health Care, 13 Parklawn Drive, Wednesday, June 27, from 3:30 to 7 pm.

Similar MDA-sponsored events are occurring nationwide.

For more than 50 years, MDA has been the leading nongovernmental funding source of research seeking treatments and a cure for the deadly disease that affects more than 30,000 adult Americans, with 5,000 learning they have the disease every year.

On average, most people die within three to five years after their ALS diagnosis. The disease destroys nerve cells that control the body’s voluntary muscles, including those that support breathing. Eventually, nearly all of these muscles become paralyzed.

The event will begin with a presentation on MDA’s efforts to provide help and hope to those affected through its research, services, advocacy, and educational programs. 

MDA operates more than 35 MDA/ALS centers across the country that specialize in ALS care and research. The centers help accelerate clinical trials for ALS, and are part of MDA’s outstanding network of more than 200 hospital-affiliated clinics. 

In addition to providing medical care through its nationwide clinic network, MDA’s ALS services include an equipment loan program for families in need of wheelchairs, communication devices, and more.

The association also assists with medical equipment repairs; produces an extensive array of ALS-specific publications; online chats; and maintains a comprehensive website, www.als-mda.org. MDA also co-sponsors various support groups for individuals, family and friends affected by ALS.

One group meets at Bethel Health Care on the fourth Wednesday of each month from 4 to 5:30 pm. For more information, 203-830-4180.